The Research Assistant will recruit and onboard research participants, new staff, and trainees. This position will serve as the main point of contact for project-related inquiries both outside and within the Institute. This staff member works directly with stakeholders, grant collaborators, community partners, and research staff to accomplish the goals of given research project(s). The incumbent will monitor systems and processes; provide updates; ensure data accuracy; support the training functions; and assist in the preparation of grant submissions and progress reports.

1. Assist in clinical research studies of Neuroepigenetic Disorders.
a. Collaborate in the development of research protocols.
b. Organize research involving collecting measures according to research protocols from research participants, parents/caregivers, and other sources at designated intervals.
2. Assist with the coordination and communications of research projects in accordance with the funding agency’s award statement, including the recruitment of participants, implementation of all aspects of study protocols, and communications with collaborating investigator teams.
3. Assist with telephone screenings and schedule research subjects for evaluations.
4. Maintain a schedule for research appointments.
5. Assist with subject recruitment activities (i.e., mailings, posting fliers, managing social media, drafting newsletters, contacting outside foundations and agencies, etc.)
6. Score research assessments, check scoring, and enter data into databases.
7. Obtain and track medical records for research subjects.
8. Assist with writing up procedure sheets for research protocols along with developing case report forms, and other research related forms.
9. Assist with the acquisition and maintenance of all data collected for research studies.
10. Assist with developing databases and tracking data.
11. Assist with training new staff, students, and volunteers on all aspects of the research protocols.
12. Assist with literature reviews, and writing up the results of ongoing studies, including submissions to conferences, peer-reviewed publications, and grants.
13. Assist with the preparation of presentations to internal and external outside agencies for educational and recruitment purposes.

EDUCATION:
Bachelor’s degree is required.

EXPERIENCE:
• One (1) year of experience with biomedical or social research experience preferred.
• Familiarity with child development and knowledge of human genetics is preferred.